As many of you know, it’s been about 7 weeks since my brain surgery. My headaches are mostly gone but I’ve still been experiencing a great deal of shoulder pain and neck pain (mostly in the front). Yes, I have painkillers and muscle relaxers but here’s the thing, I don’t like taking them. 1. They…
Category: hypermobility
My Chronic Illness Christmas List
Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!
Quote of the Week
I am continuously amazed by all the chronic illness warriors I meet. You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…
My Christmas Gift is Surgery
Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…
Ehlers-Danlos Syndrome and Pain
*Disclaimer: I am not a medical professional. I am just a woman, laying on the floor, asking her body what the hell is wrong and how I can fix it.* After the two years of a seemingly downhill slope of one surgery after another, one injury after another, two years of physical therapy and endless…
Quote of the Week
I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…
Chiari Malformation Awareness Month
September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…
Strength Amidst Pain
The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…
Hydration
My Review of Liquid IV I don’t typically make a habit of doing reviews. However, I have been on a mission of finding ways to make life easier and I definitely love that Liquid IV claims to multiply hydration 2 to 3 times more than water alone. It has 3 times the electrolytes than traditional…
Bendy Like Bex 
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