Quote of the Week

I am continuously amazed by all the chronic illness warriors I meet.  You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…

My Christmas Gift is Surgery

Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…

Pain Management with CBD

I have been using PainPass cream for three weeks now and I am so impressed. Not only has it been relieving my muscle and joint pain but it instantly relieves my nerve pain which is my biggest problem. The best part is that there is no odor, no burning or no cooling. It’s just an…

Quote of the Week

I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…

Chronic Warrior

I had this strong urge to post something positive today. I think because there’s this constant uncertainty with chronic illness that we deal with daily. The focus is getting through each day as gracefully and pain-free as possible. We are all amazingly resilient and we each find our own ways of coping with whatever stressors…

Chiari Malformation Awareness Month

September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…