My apologies for my lengthy absence. I have much explaining to do. For now, I will begin with a quote of the week.
Category: EDS Awareness
Quote of the Week
Having yet another nerve block done tomorrow and crossing my fingers that it helps. However they have not usually done much for me in the past and even when they do, not for long. Now, I have recently learned of PRP therapy or Platelet Rich Plasma therapy. A regenerative medicine. This is supposed to be…
My Chronic Illness Christmas List
Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!
My Christmas Gift is Surgery
Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…
Chronic Warrior
I had this strong urge to post something positive today. I think because there’s this constant uncertainty with chronic illness that we deal with daily. The focus is getting through each day as gracefully and pain-free as possible. We are all amazingly resilient and we each find our own ways of coping with whatever stressors…
Chiari Malformation Awareness Month
September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…
Strength Amidst Pain
The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…
Quote of the Week
“Passion is the bridge that takes you from pain to change.” Frida Kahlo
Hydration
My Review of Liquid IV I don’t typically make a habit of doing reviews. However, I have been on a mission of finding ways to make life easier and I definitely love that Liquid IV claims to multiply hydration 2 to 3 times more than water alone. It has 3 times the electrolytes than traditional…
Bendy Like Bex 
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