Marriage and Caregiving

“Understanding the impact a loved one’s health challenges have on you and your spouse is a main step to ensuring your marriage remains a top priority even in the most challenging of times.” I am so honored and excited to share with you the link to my dear friend’s blog about marriage and caregiving. Vanessa…

My New Journey

When I first started this journey, it was what I thought was just one little old diagnosis. It was a rather long, twisted and bumpy ride full of lots of stops and well…. just complete breakdowns, to be completely honest, before the destination was reached.  First, there was Dysautonomia and PoTS. Then hEDS and MALS….

Quote of the Week

My apologies for my lengthy absence. I have much explaining to do. For now, I will begin with a quote of the week.

Quote of the Week

Having yet another nerve block done tomorrow and crossing my fingers that it helps. However they have not usually done much for me in the past and even when they do, not for long. Now, I have recently learned of PRP therapy or Platelet Rich Plasma therapy. A regenerative medicine. This is supposed to be…

Chiari Decompression Recovery

Hello all you beautiful warriors! I apologize for my disappearance for the past few weeks but I am finally lucid enough to do a little writing. I am two weeks post-op and now at the point that I do not need my pain pills every four hours. It’s more like every 6 to 8 hours….

My Chronic Illness Christmas List

Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!

Quote of the Week

I am continuously amazed by all the chronic illness warriors I meet.  You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…

My Christmas Gift is Surgery

Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…

Chronic Warrior

I had this strong urge to post something positive today. I think because there’s this constant uncertainty with chronic illness that we deal with daily. The focus is getting through each day as gracefully and pain-free as possible. We are all amazingly resilient and we each find our own ways of coping with whatever stressors…

Chiari Malformation Awareness Month

September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…