My apologies for my lengthy absence. I have much explaining to do. For now, I will begin with a quote of the week.
Category: Spoonies
My Reflections of 2021
Describing this year would be an interesting challenge as there have been so many high and low moments throughout 2021. There have been extremely joyous and happy moments and there have been extremely sad and low ones, too. This is a pivotal point in the year as we embark on closing the chapter to 2021 and…
Quote of the Week
Having yet another nerve block done tomorrow and crossing my fingers that it helps. However they have not usually done much for me in the past and even when they do, not for long. Now, I have recently learned of PRP therapy or Platelet Rich Plasma therapy. A regenerative medicine. This is supposed to be…
Chiari Malformation Awareness Month
Yesterday I started Neuro Rehab. Three hours a day dedicated to learning to manage these leftover symptoms. How fitting is it that I started on the first day of Chiari Awareness Month and that it also falls on the same month as my birthday? So, now it’s Chiari Malformation Awareness Month. That special time of…
Quote of the Week
Whenever people ask me what I do, I often respond with “Whatever it takes.” What does that mean? Well, sometimes it means pushing myself. Sometimes it means resting and taking a nap. And sometimes, it means just enjoying the little things, listening to music, pursuing the things I am still capable of doing. I may…
My Chiari Surgery Recovery and CBD Pain Relief
As many of you know, it’s been about 7 weeks since my brain surgery. My headaches are mostly gone but I’ve still been experiencing a great deal of shoulder pain and neck pain (mostly in the front). Yes, I have painkillers and muscle relaxers but here’s the thing, I don’t like taking them. 1. They…
Chiari Decompression Recovery
Hello all you beautiful warriors! I apologize for my disappearance for the past few weeks but I am finally lucid enough to do a little writing. I am two weeks post-op and now at the point that I do not need my pain pills every four hours. It’s more like every 6 to 8 hours….
Two Weeks ‘Til Decompression
So today marks two weeks until my surgery and I’d be lying if I said I wasn’t nervous. I spent the entire day Monday engrossed with MRSA screenings and pre-op tests, not to mention my mind racing with thoughts of “Am I doing the right thing?”, “Will this help me?”, “How much will it help…
Bendy Like Bex 
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