Chiari Decompression Recovery

Hello all you beautiful warriors! I apologize for my disappearance for the past few weeks but I am finally lucid enough to do a little writing. I am two weeks post-op and now at the point that I do not need my pain pills every four hours. It’s more like every 6 to 8 hours….

Two Weeks ‘Til Decompression

So today marks two weeks until my surgery and I’d be lying if I said I wasn’t nervous. I spent the entire day Monday engrossed with MRSA screenings and pre-op tests, not to mention my mind racing with thoughts of “Am I doing the right thing?”, “Will this help me?”, “How much will it help…

My Chronic Illness Christmas List

Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!

Quote of the Week

I am continuously amazed by all the chronic illness warriors I meet.  You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…

My Christmas Gift is Surgery

Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…

Cocoa-Chia Pudding with Raspberries

I have a new favorite anti-inflammatory breakfast and dessert that I am so excited about, I just had to share the recipe with you all. It is loaded with antioxidants, protein, calcium and chia seeds even have weight loss properties. So if you ever have that sweet tooth but are like me and need to…

Ehlers-Danlos Syndrome and Pain

*Disclaimer: I am not a medical professional. I am just a woman, laying on the floor, asking her body what the hell is wrong and how I can fix it.* After the two years of a seemingly downhill slope of one surgery after another, one injury after another, two years of physical therapy and endless…

Quote of the Week

I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…

Dysautonomia Awareness Month

October is Dysautonomia Awareness Month. The purpose of this occasion is to increase the support that people with this condition receive in their communities, as well as lowering diagnostic delays. Dysautonomia is a term that is used to describe a number of different conditions that have an impact on the autonomic nervous symptom. It can…