My Christmas Gift is Surgery

Chiari Malformation often comes with the territory of those of us with hEDS. It is something I have been fighting for several years now with a great deal of pain, seizures, auditory and speech problems and so much more. But now it has become much worse. Four weeks ago, I had my annual visit with…

Cocoa-Chia Pudding with Raspberries

I have a new favorite anti-inflammatory breakfast and dessert that I am so excited about, I just had to share the recipe with you all. It is loaded with antioxidants, protein, calcium and chia seeds even have weight loss properties. So if you ever have that sweet tooth but are like me and need to…

Ehlers-Danlos Syndrome and Pain

*Disclaimer: I am not a medical professional. I am just a woman, laying on the floor, asking her body what the hell is wrong and how I can fix it.* After the two years of a seemingly downhill slope of one surgery after another, one injury after another, two years of physical therapy and endless…

Quote of the Week

I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…

Dysautonomia Awareness Month

October is Dysautonomia Awareness Month. The purpose of this occasion is to increase the support that people with this condition receive in their communities, as well as lowering diagnostic delays. Dysautonomia is a term that is used to describe a number of different conditions that have an impact on the autonomic nervous symptom. It can…

Chronic Warrior

I had this strong urge to post something positive today. I think because there’s this constant uncertainty with chronic illness that we deal with daily. The focus is getting through each day as gracefully and pain-free as possible. We are all amazingly resilient and we each find our own ways of coping with whatever stressors…

Chiari Malformation Awareness Month

September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…

Strength Amidst Pain

The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…

Quote of the Week

“Passion is the bridge that takes you from pain to change.” Frida Kahlo