Quote of the Week

I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…

Dysautonomia Awareness Month

October is Dysautonomia Awareness Month. The purpose of this occasion is to increase the support that people with this condition receive in their communities, as well as lowering diagnostic delays. Dysautonomia is a term that is used to describe a number of different conditions that have an impact on the autonomic nervous symptom. It can…

Chronic Warrior

I had this strong urge to post something positive today. I think because there’s this constant uncertainty with chronic illness that we deal with daily. The focus is getting through each day as gracefully and pain-free as possible. We are all amazingly resilient and we each find our own ways of coping with whatever stressors…

Chiari Malformation Awareness Month

September is Chiari Malformation Awareness Month. A serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms. It is seen in one to three-percent of the population. The vast majority of…

Strength Amidst Pain

The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…

Quote of the Week

“Passion is the bridge that takes you from pain to change.” Frida Kahlo

Hydration

My Review of Liquid IV I don’t typically make a habit of doing reviews. However, I have been on a mission of finding ways to make life easier and I definitely love that Liquid IV claims to multiply hydration 2 to 3 times more than water alone. It has 3 times the electrolytes than traditional…

I Waited For You

How you can support your friend with chronic illness. Did you know how much your chronically ill friend was looking forward to that visit you promised her? Did you know how much she missed you? That all she needs is a phone call or a text. Just a little message to let her know she…

WEGO Health Awards

I have been nominated for the WEGO Health Patient Leader Hero Award and Best Kept Secret. We are elevating awareness for Ehlers-Danlos Syndrome, Chiari Malformation and other rare diseases. Please click on the link below to vote.