When I first started this journey, it was what I thought was just one little old diagnosis. It was a rather long, twisted and bumpy ride full of lots of stops and well…. just complete breakdowns, to be completely honest, before the destination was reached. First, there was Dysautonomia and PoTS. Then hEDS and MALS….
Tag: Invisible Illness
Quote of the Week
My apologies for my lengthy absence. I have much explaining to do. For now, I will begin with a quote of the week.
Strength Amidst Pain
The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…
My Review of Liquid IV I don’t typically make a habit of doing reviews. However, I have been on a mission of finding ways to make life easier and I definitely love that Liquid IV claims to multiply hydration 2 to 3 times more than water alone. It has 3 times the electrolytes than traditional…
I Waited For You
How you can support your friend with chronic illness. Did you know how much your chronically ill friend was looking forward to that visit you promised her? Did you know how much she missed you? That all she needs is a phone call or a text. Just a little message to let her know she…
WEGO Health Awards
I have been nominated for the WEGO Health Patient Leader Hero Award and Best Kept Secret. We are elevating awareness for Ehlers-Danlos Syndrome, Chiari Malformation and other rare diseases. Please click on the link below to vote.
Quote of the Week
“Always be like water. Float in the times of pain or dance like waves along the wind which touches its surface.” Santash Kolwar
If you’re on an anti-inflammatory diet or even just gluten free, it can get incredibly frustrating not being allowed bread. So, I’m sure many of you have heard of Cloud Bread. I heard about it several years ago but only finally started making it about three months ago. Let me tell you, I am hooked!…
It has occurred to me that I have not officially introduced myself to y’all. So what better way to start off the week than with an intro? My name is Rebekah. I am a former professional vocalist and theatrical performer. I am a travel expert, travel designer and marketing manager, mother of three amazing sons…
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