Tag: hypermobility eds
Strength Amidst Pain
The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…
Hydration
My Review of Liquid IV I don’t typically make a habit of doing reviews. However, I have been on a mission of finding ways to make life easier and I definitely love that Liquid IV claims to multiply hydration 2 to 3 times more than water alone. It has 3 times the electrolytes than traditional…
I Waited For You
How you can support your friend with chronic illness. Did you know how much your chronically ill friend was looking forward to that visit you promised her? Did you know how much she missed you? That all she needs is a phone call or a text. Just a little message to let her know she…
WEGO Health Awards
I have been nominated for the WEGO Health Patient Leader Hero Award and Best Kept Secret. We are elevating awareness for Ehlers-Danlos Syndrome, Chiari Malformation and other rare diseases. Please click on the link below to vote.
Quote of the Week
“Always be like water. Float in the times of pain or dance like waves along the wind which touches its surface.” Santash Kolwar
Cloud Bread
If you’re on an anti-inflammatory diet or even just gluten free, it can get incredibly frustrating not being allowed bread. So, I’m sure many of you have heard of Cloud Bread. I heard about it several years ago but only finally started making it about three months ago. Let me tell you, I am hooked!…
My Story
It has occurred to me that I have not officially introduced myself to y’all. So what better way to start off the week than with an intro? My name is Rebekah. I am a former professional vocalist and theatrical performer. I am a travel expert, travel designer and marketing manager, mother of three amazing sons…
Counting Spoons
We have our own lingo in the chronic illness world; Zebras, Dazzle, Bendy, Spoonies. This jargon communicates the most common obstacles and triumphs of living with an invisible illness. So just what does it all mean? Well, as usual, there’s always a little story behind it. When I became chronically ill, I couldn’t explain how…
Why the Zebra?
As I kick off my blog, I want to make sure that I begin by educating those whom are not part of the invisible illness community about why you keep seeing zebras on my pages. Trust me, there is an amazing and beautiful story! People with Ehlers-Danlos syndromes are often classified as medical zebras. “When…
Bendy Like Bex 
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