My apologies for my lengthy absence. I have much explaining to do. For now, I will begin with a quote of the week.
Category: Rare Disorders
My Reflections of 2021
Describing this year would be an interesting challenge as there have been so many high and low moments throughout 2021. There have been extremely joyous and happy moments and there have been extremely sad and low ones, too. This is a pivotal point in the year as we embark on closing the chapter to 2021 and…
Chiari Decompression Recovery
Hello all you beautiful warriors! I apologize for my disappearance for the past few weeks but I am finally lucid enough to do a little writing. I am two weeks post-op and now at the point that I do not need my pain pills every four hours. It’s more like every 6 to 8 hours….
Two Weeks ‘Til Decompression
So today marks two weeks until my surgery and I’d be lying if I said I wasn’t nervous. I spent the entire day Monday engrossed with MRSA screenings and pre-op tests, not to mention my mind racing with thoughts of “Am I doing the right thing?”, “Will this help me?”, “How much will it help…
My Chronic Illness Christmas List
Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!
Quote of the Week
I am continuously amazed by all the chronic illness warriors I meet. You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…
Quote of the Week
I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…
Strength Amidst Pain
The last several weeks have been rough for me. I am in excruciating shoulder pain from a torn rotator cuff. My insurance is holding up getting more imaging and I’m dealing with more Medical Gaslighting. That’s a story for another day. I am dealing with all of this opiate free. Mostly because I want to…
Quote of the Week
“Passion is the bridge that takes you from pain to change.” Frida Kahlo
Bendy Like Bex 