Counting Spoons

We have our own lingo in the chronic illness world; Zebras, Dazzle, Bendy, Spoonies. This jargon communicates the most common obstacles and triumphs of living with an invisible illness. So just what does it all mean? Well, as usual, there’s always a little story behind it. When I became chronically ill, I couldn’t explain how…

Why the Zebra?

As I kick off my blog, I want to make sure that I begin by educating those whom are not part of the invisible illness community about why you keep seeing zebras on my pages. Trust me, there is an amazing and beautiful story! People with Ehlers-Danlos syndromes are often classified as medical zebras. “When…

My Hypermobility

Some of the ways I can bend my body could be and have been considered party tricks to many people. I can bend my thumb back so it touches my forearm; my legs bend backwards; I can turn my head so far around without moving my body, and look behind me, like an owl; I…