Why the Zebra?

As I kick off my blog, I want to make sure that I begin by educating those whom are not part of the invisible illness community about why you keep seeing zebras on my pages. Trust me, there is an amazing and beautiful story! People with Ehlers-Danlos syndromes are often classified as medical zebras. “When…

Blessed are the Flexible?

The last few weeks have been arduous, to say the least. I have still been attending physical therapy, twice a week, for 7 months now. And I am proud to announce that my back is finally stronger than it’s been in over two years and with minimal pain. My doctor has also decided to move…

My Hypermobility

Some of the ways I can bend my body could be and have been considered party tricks to many people. I can bend my thumb back so it touches my forearm; my legs bend backwards; I can turn my head so far around without moving my body, and look behind me, like an owl; I…

The Journey Begins

Thanks for joining me! This is my story, my life, my dreams interrupted, my lessons and my ongoing journey. My newfound path to accepting, juggling and managing invisible illnesses and chronic pain in diseases I didn’t know I was born with until just a few years ago: Hypermobile Ehler-Danlos Syndrome and Chiari Malformation as well…