What I Wish for Others to Understand About EDS

When I was diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), it felt like everything that had happened in my life up to that point suddenly added-up. My entire childhood and adult life was filled with injuries and accidents that should have been massive red flags for hEDS, but because I was a gymnast and a dancer,…

My Chiari Surgery Recovery and CBD Pain Relief

As many of you know, it’s been about 7 weeks since my brain surgery. My headaches are mostly gone but I’ve still been experiencing a great deal of shoulder pain and neck pain (mostly in the front). Yes, I have painkillers and muscle relaxers but here’s the thing, I don’t like taking them. 1. They…

My Chronic Illness Christmas List

Today’s post is a short one. But with Christmas upon us, I figured no better time than now to put together my wish list for chronic illness. The only thing I should probably add is peace on earth, of course. Have a very Happy Holiday!

Quote of the Week

I am continuously amazed by all the chronic illness warriors I meet.  You all continue to fight your battles daily and no matter how you’re feeling, you still reach out and encourage others, advise, comfort and pray. No matter how rough and rocky it gets, you keep moving forward with a fire from within and…

Ehlers-Danlos Syndrome and Pain

*Disclaimer: I am not a medical professional. I am just a woman, laying on the floor, asking her body what the hell is wrong and how I can fix it.* After the two years of a seemingly downhill slope of one surgery after another, one injury after another, two years of physical therapy and endless…

Pain Management with CBD

I have been using PainPass cream for three weeks now and I am so impressed. Not only has it been relieving my muscle and joint pain but it instantly relieves my nerve pain which is my biggest problem. The best part is that there is no odor, no burning or no cooling. It’s just an…

Quote of the Week

I let this become me for a while. I let my disease define me. But that’s not who I am! Living with chronic illness makes every day a little harder, but it also makes every day a little sweeter. Though I don’t know what my future holds, I’m overwhelmed with a gratitude I didn’t have…

Dysautonomia Awareness Month

October is Dysautonomia Awareness Month. The purpose of this occasion is to increase the support that people with this condition receive in their communities, as well as lowering diagnostic delays. Dysautonomia is a term that is used to describe a number of different conditions that have an impact on the autonomic nervous symptom. It can…